PRIVILEGED: Privacy in Law and Ethics in Genetic Data

August, 2007 to August, 2010

The aim of the project is to make recommendations for research practice and public policy, including regulatory options at the national and European level and to promote the optimal relationship between research using genetic data and bio-banks and ethical interests in privacy. Ethical interests in privacy are being explicated through surveys, descriptions and comparisons of the alternative conceptions of privacy currently operating throughout Europe, Israel, Japan and Taiwan, paying particular attention to the relative interests accorded an individual as a member of a group.